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Patient Advocacy

Surprise! Researchers find MedLegal isn't social media's enemy

Deborah Weinstein June 17, 2013

Execs told Weber Shandwick that internal hurdles such as insufficient expertise and unclear ROI measures are really what's keeping them from the social-media mix.

Runs and ribbons don't do much for advanced breast cancer sufferers, survey finds

Matthew Arnold May 21, 2013

A Novartis survey finds many women with advanced breast cancer feel left out by an awareness movement focused on prevention, early detection and pink merchandise.

Business briefs: Angelina Jolie, adherence, Sanofi, Teva, AbbVie

May 14, 2013

Jolie takes on cancer awareness role, researchers identify another adherence gap, Sanofi gets slapped for scare tactics, Teva may compete for Adcock, AbbVie R&D chief leaves

FDA streamlines patient access information

Deborah Weinstein May 06, 2013

A new FDA site gives patients a one-stop shop for commenting on pending regulations, finding clinical trials and navigating treatment options.

Fabry film spotlights a rare disease

Matthew Arnold April 30, 2013

Genzyme is taking rare disease awareness to another level with a documentary film, dubbed "Facing Fabry Together," that follows four families grappling with the genetic disorder.

Diagnosing pricing issues

Deborah Weinstein April 10, 2013

CDC figures suggest patients are avoiding medications to save money, and show that out-of-pocket costs for US consumers are rising faster than those for consumers in many other countries

In Barcelona, navel-gazing pharmas find patient engagement lacking

James Chase March 19, 2013

Executives from big pharma pulled few punches on the opening day of eyeforpharma's Barcelona 2013 conference, lambasting their industry for its failure to adequately serve patients and develop enough innovative products.

MS patients hungry for info on orals, says survey

Matthew Arnold March 14, 2013

MS patients have an "insatiable appetite" for information about treatments online, particularly the new class of oral treatments, whose manufacturers could be doing more to prep them for switch conversations, a survey suggests.

Rare disease awareness more than just a day for pharmas

Deborah Weinstein February 28, 2013

Industry observances of Rare Disease Awareness Day are getting more elaborate of late—perhaps not solely for altruistic reasons, as a third of NMEs approved by FDA over the past five years were for the treatment of rare diseases.

Sanofi crowns patient advocacy contest winner

Matthew Arnold December 13, 2012

A program to create a crowdsourced disease registry was crowned the winner of Sanofi's inaugural Collaborate Activate Innovation Challenge, a contest that rewards collaboration among patient and medical advocacy groups.

Co-pay cards come under fire

Deborah Weinstein March 08, 2012

Consumer advocacy group Community Catalyst declared war on prescription co-pay cards and coupons, saying the sales tools are nothing more than kickbacks and bribes.

Remedy Health buys HealthCentral, promises broader ad reach

Marc Iskowitz November 29, 2011

Health information site HealthCentral has been acquired by Remedy Health, a multimedia provider of content and tools designed to help people manage disease, the firms said today.

Pfizer effort urges lung cancer patients to get gene tests

Matthew Arnold November 22, 2011

Pfizer Oncology has recruited Desperate Housewives and West Wing star Kathryn Joosten to feature in a national education campaign titled Lung Cancer Profiles, which aims to reduce stigma and plug molecular testing of the disease as the company deepens its investment in genetically-targeted oncology therapies.

Renewed focus on Alzheimer's could help new drugs to market

Ben Comer December 16, 2010

The House's passage of the National Alzheimer's Project Act yesterday - should it be signed into law by President Obama - could help expedite the approval process for new drugs targeting the disease, sources say.

Patient advocacy influential in drug development, says panel

Ben Comer December 08, 2010

Patient advocacy groups are an increasingly valuable resource for pharma manufacturers and FDA throughout the drug development process, since they provide, among other things, a crucial perspective, according to a New York Pharma Forum panel last week.

Web Exclusive

What NOT to say to an MS Patient

Dorothy Wetzel June 07, 2013

It is often hard to find the right words when talking to a patient, friend or family member with MS. Even with training and awareness of the disease, we often blurt out something we think is innocuous only to find out later that we have deeply offended. The Health Activists that Extrovertic spoke to had some suggestions for having positive conversations with someone with MS.

2013 Hall of Fame Inductees

An entertaining look at the extraordinary lives and careers of the Medical Advertising Hall of Fame's 2013 inductees: Peter Frishauf, Dorothy Philips and David Labson. Clips produced by JUICE Pharma.