Patient Advocacy

A Parkinson's app for patients that took its cue from HCPs

A Parkinson's app for patients that took its cue from HCPs

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Patient use of the professional app prompted the latest iteration, and the foundation behind it is set to launch a media push.

Business briefs: J&J, Manhattan Research, plus July job cuts

J&J sells off its feminine side; Manhattan Research's study on the sales rep "tablet dance"; Cepheid rolls out a consumer TB campaign; and healthcare sector job losses top out in July.

Surprise! Researchers find MedLegal isn't social media's enemy

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Execs told Weber Shandwick that internal hurdles such as insufficient expertise and unclear ROI measures are really what's keeping them from the social-media mix.

Runs and ribbons don't do much for advanced breast cancer sufferers, survey finds

Runs and ribbons don't do much for advanced breast cancer sufferers, survey finds

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A Novartis survey finds many women with advanced breast cancer feel left out by an awareness movement focused on prevention, early detection and pink merchandise.

Business briefs: Angelina Jolie, adherence, Sanofi, Teva, AbbVie

Jolie takes on cancer awareness role, researchers identify another adherence gap, Sanofi gets slapped for scare tactics, Teva may compete for Adcock, AbbVie R&D chief leaves

FDA streamlines patient access information

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A new FDA site gives patients a one-stop shop for commenting on pending regulations, finding clinical trials and navigating treatment options.

Fabry film spotlights a rare disease

Fabry film spotlights a rare disease

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Genzyme is taking rare disease awareness to another level with a documentary film, dubbed "Facing Fabry Together," that follows four families grappling with the genetic disorder.

Diagnosing pricing issues

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CDC figures suggest patients are avoiding medications to save money, and show that out-of-pocket costs for US consumers are rising faster than those for consumers in many other countries

In Barcelona, navel-gazing pharmas find patient engagement lacking

In Barcelona, navel-gazing pharmas find patient engagement lacking

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Executives from big pharma pulled few punches on the opening day of eyeforpharma's Barcelona 2013 conference, lambasting their industry for its failure to adequately serve patients and develop enough innovative products.

MS patients hungry for info on orals, says survey

MS patients hungry for info on orals, says survey

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MS patients have an "insatiable appetite" for information about treatments online, particularly the new class of oral treatments, whose manufacturers could be doing more to prep them for switch conversations, a survey suggests.

Rare disease awareness more than just a day for pharmas

Rare disease awareness more than just a day for pharmas

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Industry observances of Rare Disease Awareness Day are getting more elaborate of late—perhaps not solely for altruistic reasons, as a third of NMEs approved by FDA over the past five years were for the treatment of rare diseases.

Sanofi crowns patient advocacy contest winner

Sanofi crowns patient advocacy contest winner

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A program to create a crowdsourced disease registry was crowned the winner of Sanofi's inaugural Collaborate Activate Innovation Challenge, a contest that rewards collaboration among patient and medical advocacy groups.

Co-pay cards come under fire

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Consumer advocacy group Community Catalyst declared war on prescription co-pay cards and coupons, saying the sales tools are nothing more than kickbacks and bribes.

Remedy Health buys HealthCentral, promises broader ad reach

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Health information site HealthCentral has been acquired by Remedy Health, a multimedia provider of content and tools designed to help people manage disease, the firms said today.

Pfizer effort urges lung cancer patients to get gene tests

Pfizer effort urges lung cancer patients to get gene tests

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Pfizer Oncology has recruited Desperate Housewives and West Wing star Kathryn Joosten to feature in a national education campaign titled Lung Cancer Profiles, which aims to reduce stigma and plug molecular testing of the disease as the company deepens its investment in genetically-targeted oncology therapies.

Renewed focus on Alzheimer's could help new drugs to market

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The House's passage of the National Alzheimer's Project Act yesterday - should it be signed into law by President Obama - could help expedite the approval process for new drugs targeting the disease, sources say.

Patient advocacy influential in drug development, says panel

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Patient advocacy groups are an increasingly valuable resource for pharma manufacturers and FDA throughout the drug development process, since they provide, among other things, a crucial perspective, according to a New York Pharma Forum panel last week.

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