Patient Communities

Patient power taking center stage at event

Patient power taking center stage at event

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An upcoming leadership summit is devoted to exploring whether health social media is driving meaningful change, as well as new ways to engage with health activists.

WebMD caps search, chooses in-house CEO Schlanger

WebMD caps search, chooses in-house CEO Schlanger

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David Schlanger is the company's new chief executive, a role he's filled on an interim basis since May.

Surprise! Researchers find MedLegal isn't social media's enemy

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Execs told Weber Shandwick that internal hurdles such as insufficient expertise and unclear ROI measures are really what's keeping them from the social-media mix.

Runs and ribbons don't do much for advanced breast cancer sufferers, survey finds

Runs and ribbons don't do much for advanced breast cancer sufferers, survey finds

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A Novartis survey finds many women with advanced breast cancer feel left out by an awareness movement focused on prevention, early detection and pink merchandise.

FDA streamlines patient access information

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A new FDA site gives patients a one-stop shop for commenting on pending regulations, finding clinical trials and navigating treatment options.

In Barcelona, navel-gazing pharmas find patient engagement lacking

In Barcelona, navel-gazing pharmas find patient engagement lacking

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Executives from big pharma pulled few punches on the opening day of eyeforpharma's Barcelona 2013 conference, lambasting their industry for its failure to adequately serve patients and develop enough innovative products.

MS patients hungry for info on orals, says survey

MS patients hungry for info on orals, says survey

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MS patients have an "insatiable appetite" for information about treatments online, particularly the new class of oral treatments, whose manufacturers could be doing more to prep them for switch conversations, a survey suggests.

Use social networks to fight childhood obesity, says AHA

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The American Heart Association is trying to get us thinking about using social networks—in both the old-school, interpersonal connections sense as well as the newer electronic one—to tackle childhood obesity.

Pfizer, J&J, Novartis and Sanofi tops in social media, say patients

Pfizer, J&J, Novartis and Sanofi tops in social media, say patients

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Pfizer has the strongest social media presence of any pharma, a WEGO Health/Digital Health Coalition poll suggests.

Between patients and pharmas online, a disconnect

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Hearing patient activists and pharma and agency execs talk about connecting through social and other online channels brings to mind a room full of awkward wallflowers at a high school dance.

Remedy Health buys HealthCentral, promises broader ad reach

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Health information site HealthCentral has been acquired by Remedy Health, a multimedia provider of content and tools designed to help people manage disease, the firms said today.

WEGO Health launches online video venture

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WEGO Health is launching an ad-supported online video network, dubbed WEGOHealth.tv, that will feature "conversation-style videos" featuring its medical subject matter expert "health activists."

Orphan patient communities grow online

Orphan patient communities grow online

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Specialty pharma companies are launching online hubs tuned to the needs of the orphan community.

GSK and HGS put the 'us' in lupus, ahead of Benlysta FDA decision

GSK and HGS put the 'us' in lupus, ahead of Benlysta FDA decision

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GlaxoSmithKline and Human Genome Sciences launched a patient community for lupus sufferers and their friends and family, in anticipation of an FDA decision on Benlysta in March.

Patient advocacy influential in drug development, says panel

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Patient advocacy groups are an increasingly valuable resource for pharma manufacturers and FDA throughout the drug development process, since they provide, among other things, a crucial perspective, according to a New York Pharma Forum panel last week.

In "Wild West" of Facebook sites, snakeoil salesmen abound

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Social networks are a "Wild West" of medical misinformation, a study has found. More than one in four comments on Facebook diabetes communities is promotional in nature, generally for unapproved products, Harvard and Brigham and Women's Hospital researchers said.

WebMD launches social networking venture

WebMD launches social networking venture

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WebMD is launching a social networking platform, dubbed WebMD Health Exchange, aimed at giving users more control and connecting them with experts to talk about health issues in real time.

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MM&M EBOOK: PATIENT ACCESS

Patient access to pharmaceuticals is a tale of two worlds—affordability has improved for the majority, while the minority is hampered by cost, distribution and red tape. To provide marketers with a well-rounded perspective, MM&M presents this e-book chock full of key insights. Click here to access it.