Lynn O’Connor Vos is president and CEO of Muscular Dystrophy Association.
What’s the one big thing most people don’t realize about the Muscular Dystrophy Association?
It is the largest source of funding for neuromuscular disease research outside the federal government.
We have invested more than $1 billion since our inception, and research we have supported is directly linked to approved, life-changing therapies across multiple neuromuscular diseases.
How does your background as a nurse inform your thinking in the role?
My early career supports my work in both areas of our mission: innovations in science and care.
My background in nursing has given me a hands-on understanding of the kinds of care and support that can help transform the lives of our patients.
And my experience in clinical research provides me with valuable grounding in that realm.
What was surprising about the transition from the agency world?
Many of the issues are the same. For instance, we realized there was a big need for med-ed for both patients and providers in our community, so we established a med-ed team here just as we did with Phase Five Communications.
Most distinct aspect of your personal office
I work at a round table. It facilitates collaboration.
Commute difficulty on a scale of 1 to 10
A one. I enjoy my morning train time because I get to read and start on the day’s emails.
Average wake-up time on a weekday? First site or app you check in the morning?
I wake up early so I have time to exercise before work. The first thing I check is Twitter.
If you weren’t working in this field, you’d be…
Leading a startup in some sort of health tech.
Best tip for keeping work and home life manageable
Take good care of yourself. Otherwise, you won’t be able to be your best self at work.