In 2013, Wes Michael founded Rare Patient Voice in order to improve medical products and services by giving a voice to rare disease patients and their family caregivers. The idea came to him while working at a pharmaceutical market research company. When asked to create a hemophilia panel, he recognized the business opportunity in making a patient’s voice accessible to all clients. With the aim of sharing the resource, he declined investments from clients and other related sources. Since then, Michael has grown Rare Patient Voice to a panel of 100,000-plus patients and family caregivers dealing with more than 700 rare and non-rare diseases.
Michael’s belief in the power of patient insights for improving treatment options has fostered the company’s expansion into nine countries. In its 10 years, Rare Patient Voice has conducted thousands of studies and rewarded patients and caregivers with more than $10 million to fund their participation in research.
From the March 01, 2023 Issue of MM+M - Medical Marketing and Media
