Still, the pharma industry scored lower in 2022 for key activities that are meaningful to these rare disease patient groups, including fair pricing policies and access to medicines.
Genentech’s Double Take fashion show has a second act
The runway show, which features people living with SMA as well as clothing designs informed by members of the community, will be held at the Cure SMA’s annual SMA Conference in Orlando on Thursday.
Sobi buys CTI BioPharma in $1.7B rare disease play
To promote the effort, Agios released a nearly 90-second teaser video featuring patients and HCPs discussing the importance of better understanding and treating red blood cell disorders.
On Rare Disease Day, Boehringer Ingelheim, FIT partner to extend The Unwearable Collection